Tuesday, November 8, 2016

"Best decision I ever made....."

Best decision I ever made was get this little munchkin revised at 3 days old. My son was 2 before he was revised (not by choice) & through all we had to suffer w/ him We decided not to go down that path if we didn't have to wth her. She had the same level 4 ULT, & type 2 ATT, & I believe b/c we got her revised so early it has made the WORLD of difference. My son has SPD, many many delays in language, gross motor, chewing/swallowing problems... the list goes on. He has been in speech & OT for a year & is FINALLY getting caught up. But this little girl hasn't had ONE SINGLE PROBLEM (as of yet haha). She walked at 9.5 months, eats every single thing I put in front of her, & is Talking at 11 months. I had no clue kids could talk so early, but I teach her a new word almost every other day. It's just the most amazing thing. Ties affect much more than breast feeding, & I'm so so so so sooooooooooooooo thankful we were able to make her life easier than her brother's. They are both awesome kiddos in spite of it all, & today w/ 2 revised kiddos I am able to see the light. GOd bless the doctors that are fighting for us parents w/ kiddos w/ ties!!! ❤️
~ Amy Smith

"He couldn't use his tongue to swallow...."

Austin had a very tough first 6 months of life. He was extremely fussy, took in tons of air while nursing and finally started to refuse the breast. I used to have to swaddle him and rock back and forth while standing to get him to eat at all. It was heartbreaking. When it came time for solids at 6 months he would gag and vomit, he couldn't use his tongue to swallow. He would only sleep swaddled too. It took 6 months of questioning the pediatrician, taking him to the chiropractor and other doctors before we finally figured out he had a PTT and a lip tie. He was revised by a PP at 6 months old. There was immediate relief and he slept that night without a swaddle for the first time in months. Those first couple weeks were difficult, the stretches were a nightmare, every feeding was different. Sometimes he ate well and other times I questioned if he had improved at all. Between the second and third week things got a lot better. He was eating and sleeping well and I quit the stretches after 15 days. He was also able to eat solids without vomiting! By 4 weeks post revision many on the symptoms had returned. I went back to the PP to find out that his tongue had reattached. So at 7 months old he had his second revision. I was much more diligent with the stretches that time. We are now 2 months out from his second revision and he is doing wonderfully!! He is so happy, relaxed while eating, sleeps better and is putting on some weight. My only regret is that we weren't able to figure out sooner what was causing all his problems. He still goes weekly to the chiropractor just as a precaution. To all you Mama's still in the trenches, I know it is tough, I know the heartbreak, I know the roller coaster of emotions. It can and will get better. Stay strong!!
~ Alicia Rice


Saturday, November 5, 2016

My 16 month old is finally eating real food!!

My 16 month old boy had a tongue/lip/buccal tie revision procedure two months ago. The procedure and the stretches were traumatizing for us, probably due to his age, BUT he is now eating real food (he was exclusively on formula since 8 months) with no difficulties and his severe GERD  just disappeared, only three weeks post procedure. He is no longer on medication. It is amazing.
PS: we also started seeing a chiropractor before the procedure and continue to do so after the procedure and would highly recommend it.
~ anon